We've been on a pre-introductory specific carbohydrate diet for the last four days and things are getting better now that we have the yogurt maker in hand. Today, I don't think we ate anything "illegal".
A side effect of the diet has been a 40% reduction in insulin for me, and I'm still having low blood sugar all day long. Tonight I was watching Sage alone and my blood sugar dropped to 36... not good. Need to keep better track of that...
I took our son to Children's for an appointment today to break the news that I wasn't going to put him on any more medications and was going to attempt the SCD. I could not believe the enthusiastic response I received and genuine support. It was a big relief to have the GI doc supporting our decision and actually putting us into contact with other people who've chosen the same route. Phew...
Tuesday, June 30, 2009
Sunday, June 28, 2009
Specific Carbohydrate Diet
We've embarked on a new form of therapy for Cyrus' Crohn's disease: the Specific Carbohydrate Diet. We're in the first couple of days of the diet and are very overwhelmed. We need to persevere though if it is to have any benefit... otherwise we will be back at Children's where they serve up one nasty drug after another. We have not been back for the "what's next" follow up visit since Cyrus' overnight stay. We've been avoiding it and wanting to see how things would go without the meds. Symptoms are back and we're now desperate. The SCD diet has the highest (anecdotal) rate of success of all therapies, but requires a moderate to large diet adjustment. For an adult, no big deal... For a three year-old... big deal!
I'll report our trials and tribulations here - wish us luck...
I'll report our trials and tribulations here - wish us luck...