Thursday, February 4, 2010
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BTW - for some reason, we have some trouble posting comments when using a Firefox web browser. Safari seems to work though, haven't tried IE...
Wednesday, February 3, 2010
February Update
Our son is now (today) 7 months on the SCD! Wow, time flies when you are cooking and doing dishes... :) Our dishwasher runs a minimum of once a day, most days twice, and our kitchen often looks like a bomb struck. No real updates food-wise, we are basically in the same spot that we've been for the last 6 months.
Over the last month, our boy's CD was getting slightly worse and we elected to put him on *something* to try and help heal his gut. SCD alone just isn't doing it and we had another prolapse incident. (very traumatic experience) That additional *something* ended up being Entocort (budenoside) with a supplement of enteral nutrition to boost weight and height gain. (he's seems noticeably smaller lately) We will continue on SCD and then try to wean off of Entocort in a few months if it works.
So far, Entocort seems to be working okay and we haven't started the enteral nutrition yet. Thank goodness we have insurance. The price of Entocort without insurance is absolutely ridiculous and should be illegal: $800 for a one-month supply. On the other hand, we're heading in the right direction bowel movement-wise and it's had fewer side effects than prednisone. Also, he has more energy and seems to have better focus on activities. Our 4 year-old needed to learn how to swallow two medium-sized pills and he's done a great job so far. We haven't started the enteral nutrition yet because... of all things, it's not SCD legal. We're waiting to see if Entocort does its voodoo magic and will introduce the EN in a week or two.
Hope you are all doing well...
Over the last month, our boy's CD was getting slightly worse and we elected to put him on *something* to try and help heal his gut. SCD alone just isn't doing it and we had another prolapse incident. (very traumatic experience) That additional *something* ended up being Entocort (budenoside) with a supplement of enteral nutrition to boost weight and height gain. (he's seems noticeably smaller lately) We will continue on SCD and then try to wean off of Entocort in a few months if it works.
So far, Entocort seems to be working okay and we haven't started the enteral nutrition yet. Thank goodness we have insurance. The price of Entocort without insurance is absolutely ridiculous and should be illegal: $800 for a one-month supply. On the other hand, we're heading in the right direction bowel movement-wise and it's had fewer side effects than prednisone. Also, he has more energy and seems to have better focus on activities. Our 4 year-old needed to learn how to swallow two medium-sized pills and he's done a great job so far. We haven't started the enteral nutrition yet because... of all things, it's not SCD legal. We're waiting to see if Entocort does its voodoo magic and will introduce the EN in a week or two.
Hope you are all doing well...