Wednesday, May 5, 2010

Updates

The Positives:
Cyrus is averaging a pound a week right now on EleCare. 3.5 pounds in 3.5 weeks. The past couple of days have yielded little or no blood and... solid-ish bunny turd-like stools. Amazing. On top of this, he feels great and looks great too.

The Negatives:
Other foods are starting to become an issue. Particularly, cheese. He wants some and we're not giving it to him. He also requests to *smell* each and every food that we eat. This is kind of cute in some ways, but our son has a little obsessive-compulsiveness about him and this is starting to get annoying.

The Bottom-line:
Enteral nutrition is pretty fantastic. Looking at it externally from a parent's point-of-view, I would do it full time if I were a person with Crohn's and could afford it.

Sunday, May 2, 2010

3 Weeks

Today marks three weeks on enteral nutrition. Our son has gained 3 pounds in 3 weeks and continues to have a lot of energy. The most I have seen from him in a long time which is wonderful to see. He has been consuming about 56 ounces of EleCare per day and sometimes more. The nutritionist recommended at least 50 ounces so we are on target with the correct amount.

For the past few days his stools have been pretty much blood free! He has been a happy kid and has not complained at all about his tummy hurting while being on the EleCare. We know it has been making him feel good and he looks good too. His face is fuller and the rings are gone from under his eyes. We will take him in for a blood draw in about a week and a half to check his numbers and see where his inflammation markers are at after four weeks on TED.