We managed to spring Cyrus from the hospital yesterday afternoon and that made him pretty happy in spite of him still running fevers with a pin-prick rash. The diagnosis: a very unsatisfying non-specific viral infection (of course, complicated by Crohn's).
What follows next is yet to be determined, but at least everyone is home for Mother's Day.
Sunday, May 10, 2009
Friday, May 8, 2009
In The Hospital
Our son has had his fair share of doctor's visits and checkups in the last six months, and now gets a 3-4 night stint at the Children's Hospital. Right now, the doctors aren't totally sure what is the matter with him - but it seems related to the Crohn's drug he has been taking (6-MP). The drug is designed (well, off-label used) to suppress his overactive immune system. As such, it seems to make it difficult for Cyrus to fight off the common cold. Alternatively, it might make it easier for him to pick up something that most of us might not get. Either way, he's been spiking fevers for about a week and we can't seem to keep them down without additional medication.
My wife and I are alternating nights at Children's, and our son isn't allowed to leave his room until they rule out every infectious disease under the sun. As a result, everyone we see in this "quarantine" comes in with masks and full armor against our son (who hasn't managed to kill us or his sister yet).
Our son is just a tough little kid and is taking this like a champion (after some initial consoling and reassurance that we'd be back home some day). He's a good boy and we love him very much... hoping that he gets better soon.
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