Saturday, March 27, 2010

Weaning off Entocort, on to Enteral Nutrition

That's the outcome of the GI appointment this week. We're meeting with a nutritionist on Wednesday to determine how many shakes to drink each day and how to proceed with getting insurance coverage for them (if possible). After 8+ months of the SCD, I think he can handle 8 weeks of nothing but shakes. In many ways, the EN will be much simpler: if he is hungry, I know exactly what to feed him! Actually, the EleCare tastes a lot like cake batter and our son sucks it down and says it tastes great. We bought some of the Absorb Plus (based on a commenter's suggestions) and that stuff tastes decent too (the chocolate is much better than the vanilla or berry).

Our boy jumped a growth curve, and not in the positive direction. He has tracked along the 75/50 percentile for height/weight B.C. (before Crohn's), and now seems to be closer to 40/30. It's time to try something different for a change and we hope the EN diet will boost his growth.

Here's a picture of Dr. Jekyll / Mr. Hyde in his best outfit:


He broke our hearts this week (well, not really) and *finally* declared that he had taken himself to go poop and cleaned himself up without any help.  His sister, who is a little over 2 years old, has been wearing underwear to bed for the last couple of months and this seems to have made an impression on our boy... fueled a little competitiveness that we haven't seen before!

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